Sunday, February 27, 2011

Healing Hashimoto's (or any chronic disease): Listen to Yourself!

The message in this post is short and simple. And I'm not going to make you read the whole thing before you get this message loud and clear: Listen to yourself and your body, no matter what other people say!!!!!

Lately--as you may have read in my previous post--I've experienced a relapse. I went to the doctor three days ago and my latest blood test results confirmed this. My hormone levels have dropped in half since a year ago. In addition, my neurotransmitters have improved but are still quite out of balance---especially my serotonin levels (serotonin is our "feel good" neurotransmitter), and my adrenals are still pooped. I trust my doctor completely, especially because I was very skeptical at first. I was fed up with feeling like crap and was on the verge of going on anti-depressants. She was the fourth practitioner I'd seen in a year. So, I did my research and came to my first half-dozen appointments with a long list of questions. She spent a lot of time with me explaining things. So, this alone built trust. More importantly, however, she's been down the road I've been on. She was diagnosed with Hashimoto's several years ago and tried the Western medicine path to no avail (they just prescribed drugs which didn't get to the core of the problem). So, she went to see a naturopath. Did I mention my doctor is an M.D.? To be brief, her naturopath helped her heal. She still experiences symptoms from time to time during flare-ups, but she is a total convert to integrative medicine. Lastly, my doctor is smart! She sees the big picture of healing. At each appointment she asks me questions not only about my physical symptoms but questions about how my relationship with my husband is going (we are newly married), whether or not I'm exercising, how I'm eating. There is more and more scientific research supporting a holistic approach to healing chronic disease (I highly recommend reading David Servan-Schreiber's book, Anti-Cancer: A New Way of Life for more details on the latest studies being conducted on this). She tries natural approaches first and rarely prescribes medication. The reason for this? She's seen the results of the natural approach! It's as simple as that.

So, like I said, I trust my doctor. I trust my treatment plan. I am fully committed to feeling well. I go to yoga 2-3 times a week. I eat a Paleolithic diet (high protein, a lot of vegetables and no grains). I walk every day. I meditate every day. I see a therapist for emotional support. I'm not saying I always do it perfectly (wine and chocolate are my friends), but I am taking noble steps toward getting better. In other words, I am a dream patient!!!! I am totally committed to the healing process! More importantly, I have experienced feeling better, so I trust that what I'm doing is working which motivates me to do all that I can do to heal. But the healing process is not a straight upward progression, there are peaks and valleys. And the body is complex, so addressing all the layers of what's happening can be tricky and complicated. This means that a pill or pills will not "cure" what ails me. It's a process. Do we really think we can cure a health issue that's been building for 40 years in 3 months? We are such an instant gratification kind of society that it's hard for us to come to terms with the fact that healing involves a process not just a pill. And believe me, if I believed a pill would do the trick, my medicine cabinet would be full! But the research I've done suggests that it takes more than this to heal.

You can see why then, I get annoyed when I share my challenges with friends and colleagues and some of them give me off-the-cuff advice like, "Why don't you just go on meds so you can feel better?!!" or "Are you sure you don't want to try anti-depressants?" or "Have you tried such and such?" Ok folks, enough! I try to have compassion for these types of responses. I'm sure they are only trying to help. I can empathize with the fact that watching your loved one suffer can be painful, and that all you really want to do is try to help them fix it so that they no longer suffer. I can also understand that they may be uncomfortable with hearing someone be real about their health challenges. Or maybe they just have a different idea of what "healing" or "curing" looks like. I often run into people who think that integrative or alternative medicine is a bunch of new-age hooey. They live by the Western medicine paradigm. If they read David Servan-Schreiber's book they might change their view. He strictly believed that Western medicine was the saving grace for any illness until he was diagnosed with a cancerous brain tumor and experienced a relapse after the standard western approach failed. He ended up using a combination of chemotherapy, dietary and lifestyle changes, meditation, and psychotherapy to help heal his cancer. We tend to believe what we can see, which often means that if there is no scientific research to back it up, then there is no validity to the method. Dr. Mahmut Oz says that there is a gradual movement toward devoting more money toward research on alternative healing methods, but thus far, not many people have wanted to invest in it, therefore there is not a lot of research to support it. But that doesn't mean it doesn't work. Shamans, Tibetans, the Vedics, Native Americans, all of these indigenous cultures have practiced "alternative" healing, often with great success. But that's another blog post.

The reason the off-the-cuff responses are so frustrating to me is that, in my perception, these folks are offering advice that 1) I haven't asked for, 2) is based on a lack of in-depth knowledge about the exact nature of my health issues, and 3) is given without knowing what I've already tried, what has or hasn't worked, and what my treatment plan is now. Believe me, I will ask you for your suggestions if 1) my doctor runs out of ideas, 2) if what I've tried doesn't end up working, or 3) if you have just read cutting edge research that I haven't read already.

So, please people, if you have friends and loved ones who struggle with chronic illness do your research, ask them questions, support them with your awesome listening and empathizing skills but do not give advice unless it is invited! Receiving unsolicited advice when you are already feeling like you're doing everything in your power to improve your health feels like a slap in the face. It doesn't acknowledge what you've already tried and the progress you've made to that point. This may just be my perception so consider it, talk with your loved ones and see how they feel about it. Maybe they feel really supported by your advice because they hadn't thought of your suggestions before. It's just that in my case, I spend about 60-70% of time doing research, talking to my doctors, reading books, listening to my body, and following my treatment plan. I know what I'm doing, I just need encouragement and love and a listening ear when I'm feeling fed up.

That said, I do have people in my life who I feel are very supportive--colleagues, friends, family, my husband, my yoga teacher, my therapist. The best support I receive is when someone simply listens, tries to understand what I'm experiencing, and offers warmth and encouragement. Maybe they can even relate to the challenges I'm facing so I don't feel so alone in the whole deal. In any case, as a recovering advice-giver myself, I understand the urge, but now I'm realizing how little help it truly provides to someone who is struggling.

I know my body well. And I trust my doctor. Most of all, I trust myself and the path that I've taken to get to where I am. The bottom line is that when I take time to listen to my body and myself, there's always new wisdom and guidance revealed about my next step to healing. And I have a smart, supportive doctor to help me with the details. What more do I need? A listening ear, an open heart, and a shoulder to lean on, that's what. Getting healthy and being happy is not automatic. Sometimes we have to work at it---some of us more than others. We need each other---not what's in our heads, but what's in our hearts. That's the good stuff. And that's what helps us heal. So, if you struggle with chronic illness, I'm going to give you some unsolicited advice (remember, I'm a recovering advice-giver): Consider your doctor's advice, the latest research, your loved ones' concerns, but most of all, listen to yourself and your body.

I should also add, that medication (aka, a pill) does indeed help many people. I don't want to sound like I am totally against Western medicine and what it has to offer. Some folks find anti-depressants, for example, to be very useful in taming their symptoms--some for the long-term (years) and some for a shorter period of time like 6mo to a year. I don't want to minimize the dramatic effects some folks experience when they take these medicines. To each his own. It's just that for me, in my case, the problem is much more multi-dimensional. So, back to my advice: Listen to yourself! If meds help you, then by all means take them! If they don't, then explore what works for you. No one can tell you how to heal. They can offer information, suggestions, etc. but you are the one inhabiting your body. I've found that as I get more and more in touch with my body's responses to different choices I make, foods I eat, types of exercise in which I engage, the more I can rely on it to guide me in the right direction.

I invite you to listen and learn and see what you discover.

Monday, February 7, 2011

Autoimmune Disease: Dealing with Relapse

Over the past few months I've been feeling more vitality in my day-to-day life. However, with increased work demands, financial limitations, and, as a result, less money for yoga, I've experienced a relapse in my health. It's disappointing to say the least, but as a psychology instructor who teaches about change and relapse, I should know better, right? Wrong! It's a whole other ballgame when it hits so close to home.

A little over a week ago, I had a more intense teaching schedule than usual. Now, I should mention that "intense" for me is very different from my colleagues' definition of the word. One of my colleagues is around my age and is currently teaching 6 1/2 classes! I am teaching 3 1/2. But when you have an autoimmune disease of which fatigue is one of the primary symptoms, it doesn't take much to tip you over the edge. I should also mention that one of the classes I was teaching that week consisted of ten hours of teaching over two days--2 1/2 hours on Friday and 8 hours on Saturday. It's tiring even when you don't have a chronic illness. I was actually feeling pretty energetic and upbeat going into Friday's class, but I could tell that I wasn't as excited to teach as I usually am. I just didn't have the usual va-va-voom energy. But I got through the class with flying colors---aka, no one ran out of the room screaming, many students thanked me for a fun and informative class, and I felt good about the job I'd done.

That evening, however, I was pooped. I ended up going to bed at 9pm and waking up the next morning at 9am. Yes folks, that's a 12-hour night of sleep. Now, before you get jealous and start wishing you had the freedom to sleep so long, realize that even 12 hours of sleep didn't cure my deep exhaustion. I'd worked Friday evening to Saturday evening, slept 12 hours, proceeded to spend the day with my husband's parents (we had a great time, by the way), and felt pretty good when I hit the pillow. But, when Monday morning came around, it felt like someone hit me over the head with a baseball bat. I dragged myself out of bed and into work, however, after teaching my first class I was even more exhausted. I decided to head home. I ended up taking the rest of the week off--6 days off, to be exact.

The following Saturday I pulled a 13-hour night of sleep. Again, I know you are thinking, "So, what is your problem? I'm lucky if I get 6 hours a night with the baby crying, my kids waking me up at dawn, and my insomnia kicking in at all hours of the night". But again, let me explain. You think that 6 days off cured my exhaustion? Not quite. Obviously, by Saturday I was bushed...again. How did this happen? Every day that week I took time to read, relax, nap, eat good food, take light walks, stretch, meditate, take deep breaths. You'd think with a schedule like that I'd be good to go!

Well, admittedly, I did feel better today (Monday) when I woke up. I actually felt pretty energetic after teaching both of my classes. But I was miffed that it took me more than 6 days of relaxation and 7 nights of luxurious sleep to get there!

After some frustration, tears, and fear that I would never "feel like myself again"--read that as, having the energy to drive across town on any given day to run arrends, enjoy the company of friends, see a movie, go to an art show, or take a walk--I came to a realization: What if I never feel like myself again? Would that be so bad? Would days filled with relaxation, yoga, less teaching and more writing, having friends over more often, and sticking close to home to read a book or enjoy our garden or spend time cuddling with my husband be such a bad life? Hmmm. What exactly am I complaining about again?

I will tell you what (oh, did you think I was going to get all enlightened on you? Well, hold on, I'm getting there)! I'm complaining about the fact that I can't be the woman I used to be. That is, I can't fit as many tasks into a day; I can't go out to as many parties or bars or art shows or music shows in a week; I can't teach as many students or grade as many papers; I can't work out at the gym for an hour each day; I can't drink multiple glasses of wine or eat sugary desserts; I can't multi-task or people-please or be highly productive. Hmmmm.....again I ask, what exactly am I complaining about?

It is an adjustment, this new level of energy. I certainly won't deny that there have been growing pains, resistance, temper-tantrums, and tears. My identity my whole life has been one of "do-er" extraordinaire! I am a strong, kick-ass woman who can lift anything, do anything, get anything done you need doing! But those days may be over forever and it's time I accepted it. It is a new era of putting myself first without being self-centered; spending time with friends on my own terms while still extending a helping hand and a compassionate heart; exercising without overdoing it; serving my students while remaining calm, peaceful, grounded, and relaxed. It's about doing things differently. Doing less, being more and when I find myself needing to "do", doing in a way that is sustainable to my body, mind, heart and soul. End of story.

So, have I been feeling sorry for myself? Hell, yes! Will I in the future? Probably! But what if I just let go, surrendered, accepted my place in the river of life right where I am? I am aware that the people who new me as the old Margaret may not "get it" or even want the new me. This is scary, but, at the same time, freeing! Who will I attract to the me now? Maybe people who really "get" the new Margaret!! Hey, sounds pretty good! I am also aware that I may not be able to bring in as much money as I once could by working more hours, but hey, if I follow my heart, how can I not attract abundance? Like attracts like, right?

I am feeling challenged these days, but I am hopeful. Lately, my days have brought extreme neck and shoulder pain, the heaviness of exhaustion, irritability about the smallest things (oh, my poor husband), impatience at having to take things so slowly, and frustration that I don't have as much vitality as I'd like to have. My fuse is short. My sleeping hours are long. My time with friends is less frequent. My need to slip into bed and read a book in the middle of the afternoon, more frequent. You get the drift. I'm in transition and sometimes I am kicking and screaming my way through all the changes. But, when I get quiet, when I take the time to slow down and rest, I hear my inner voice of wisdom guiding me along the path. I trust that voice with all my heart. I really do. It wouldn't lead me down a path that didn't have some gifts awaiting me. Just because many of my fellow humans are still traveling at the speed of sound does not mean that I need to, and it doesn't make them or me right or wrong. It's just my time to slow it down...big time! And why not enjoy those slow, innocent kiddie rides again? I've spent most of my life whirling on those roller coasters. It's time to get off and take it easy.

All that said, my neck is sore, my stomach hungry, my mind tired. I think I'll lay down now and take a big, 'ol nap!! Sleep tight!